Heart Valve Voice Canada’s Managing Director, Ellen Ross shares summit highlights including the transformative power of patient advocacy in driving meaningful change.

The study found that patients with severe asymptomatic aortic stenosis fared better with early intervention by minimally invasive surgery than with clinical monitoring every six to 12 months. Monitoring is the current practice.

The research study was co-authored by Dr. Philippe Pibarot, a Heart Valve Voice Canada board member.

Len Crispino shared his patient story about living with multiple heart conditions, kidney failure and cancer in a video to open the November 2024 Unite Summit.

Heart valve disease is common and treatable, yet too few people know they could be at risk. Now, mobile clinics from the University of Ottawa Heart Institute are screening people in the Ottawa area for valve disease and other heart conditions. The clinics target individuals 65 years or older focusing on underserved communities, including rural residents and Indigenous people, and aim to get patients to the care they need faster.

More people are becoming aware of heart valve disease, and more people living with valve conditions are getting support and information to manage their health. These are just some of the ways Heart Valve Voice Canada — the country’s only national, patient-led heart valve organization — is making a difference. Learn more in our 2023 Impact Report.

The first patient-led global manifesto calling for early detection and diagnosis of cardiovascular disease is available now, and Heart Valve Voice Canada was delighted to contribute!

The report Heart Valve Disease: Working together to create a better patient journey commissioned by Heart Valve Voice Canada and written by The Health Policy Partnership provides a comprehensive view of the entire heart valve disease patient journey from first detection to diagnosis, follow-up, and treatment, identifying gaps and their impacts. This report was developed under the guidance of a multidisciplinary advisory council, whose members included people with lived experience and healthcare professionals engaged in heart valve disease in Canada. The patient perspective was the common thread throughout this report.

This global roadmap, to which Heart Valve Voice Canada is a contributor, is designed to support patient organizations and advocates who wish to implement shared decision-making for people facing heart valve disease treatment options.

We are pleased to announce Hugh MacPhie as the new Heart Valve Voice Canada Chair. Having joined the board in 2022 Hugh will build on the board’s mission to grow it's reach and impact.

In an exciting new partnership, the Canadian Cardiovascular Society, Heart Valve Voice Canada, and MediSystem Pharmacy are teaming up to put a spotlight on heart valve disease and improve early detection for those most at risk.

As we work towards our mission to improve the health and quality of life for people living with heart disease, a key part of our action plan involves finding the right partners to drive our patient advocacy forward. Our Heart Valve Voice Canada Board of Directors is the heartbeat of our organization and we are continually looking for advocates who will help us empower people and save lives. We are honoured whenever someone volunteers their skillset and time to our mission, and we are happy to announce a few new additions to our team.

Packing the right items and being prepared for your hospital stay can remove some of the stress of your upcoming treatment. Anticipating what you will need when you come home can also help you focus on your recovery and support your journey back to an active life.

Heart valve disease patients who live in Saskatchewan and are candidates for a transcatheter mitral valve repair procedure, can now get the procedure done in their home province, avoiding personal out-of-province travel costs, health risks, and accompanying stress.

Early screening of heart valve disease saves public health care systems resources, but prevalent ageism delays diagnosis, limits care, and leads to avoidable costs and impacts on people’s lives.

All MPPs and staff at Queen’s Park in Toronto were invited to participate in the #ListenToYourHeart Challenge reception. MPP Rudy Cuzzetto introduced Bill 66, The Heart Valve Disease Awareness Act, proclaiming February 22nd as Heart Valve Disease Awareness Day in Ontario. During the reception, the landmark report, Heart Valve Disease: Working together to improve the patient journey was shared with key decision makers. More than 90 policy makers and staff participated and showed their support.

Focusing on healthy living is important for everyone, but it’s particularly important for someone who has been diagnosed with heart valve disease. Healthy living includes managing key risk factors for your heart health like not smoking, maintaining a healthy blood pressure measurement, exercising, keeping a healthy weight, and managing your blood cholesterol. There is a lot you can do to control these risk factors for your heart health.

Read this National Post story to find out why Dave, a heart valve disease patient, says you shouldn’t dismiss symptoms like feeling, breathlessness, dizziness or fatigue as regular signs of aging.

The Institute for Health Economics (IHE) has published a report which provides the results of a national roundtable convened in November 2021 to identify the necessary components for a national strategy to address heart valve disease. Heart Valve Disease is on the rise, affecting millions of people worldwide. It can be fatal if untreated but is increasingly treatable with early detection.

Not Another Minute should go by with Canadians not being aware of the risk factors of heart disease, especially considering nine in ten Canadians have at least one risk factor for heart disease and stroke. The stats are sobering, but in this age of information we have opportunities to increase awareness of the risk factors and steps one can take to prevent it.

Although many Canadians have been seeing their GPs virtually since March 2020 and intend to continue with virtual care for non-emergency appointments, three-quarters of respondents aged 25 and older to a national survey released today, believe the virtual visit is not as effective as in-person appointments in discovering new or worsening symptoms.