Global Heart Hub’s Unite Summit 2024: A Global Gathering for Heart Patient Advocacy
Heart Valve Voice Canada’s Managing Director, Ellen Ross shares summit highlights including the transformative power of patient advocacy in driving meaningful change.
Cardiovascular Disease Conference opens with powerful patient story by Heart Valve Voice Canada board member
Len Crispino shared his patient story about living with multiple heart conditions, kidney failure and cancer in a video to open the November 2024 Unite Summit.
Heart Valve Disease: Working together to create a better patient journey
The report Heart Valve Disease: Working together to create a better patient journey commissioned by Heart Valve Voice Canada and written by The Health Policy Partnership provides a comprehensive view of the entire heart valve disease patient journey from first detection to diagnosis, follow-up, and treatment, identifying gaps and their impacts. This report was developed under the guidance of a multidisciplinary advisory council, whose members included people with lived experience and healthcare professionals engaged in heart valve disease in Canada. The patient perspective was the common thread throughout this report.
Paving the way: a roadmap to the successful implementation of shared decision-making in heart valve disease
This global roadmap, to which Heart Valve Voice Canada is a contributor, is designed to support patient organizations and advocates who wish to implement shared decision-making for people facing heart valve disease treatment options.
Heart Valve Disease Awareness Act passes first reading
All MPPs and staff at Queen’s Park in Toronto were invited to participate in the #ListenToYourHeart Challenge reception. MPP Rudy Cuzzetto introduced Bill 66, The Heart Valve Disease Awareness Act, proclaiming February 22nd as Heart Valve Disease Awareness Day in Ontario. During the reception, the landmark report, Heart Valve Disease: Working together to improve the patient journey was shared with key decision makers. More than 90 policy makers and staff participated and showed their support.
Heart Valve Voice Canada forms new partnership to help raise awareness amongst seniors
In an exciting new partnership, the Canadian Cardiovascular Society, Heart Valve Voice Canada, and MediSystem Pharmacy are teaming up to put a spotlight on heart valve disease and improve early detection for those most at risk.